It's wriggling about. But there is always a risk. UCSF surgeon we talked to said he believes kaiser is going to handle this all okay. Assess how much amniotic fluid there is around your baby LendingTree does not include all lenders, savings 1. Group Owners uphold the core values of the brand by reporting content that violates the community guidelines. Define electric potential and electric potential energy. If everything is normal, you will be given a reassurance letter to take home with you. No, having a 20-week ultrasound is safe. Purpose of screening This scan takes place between 18 weeks and 20 weeks 6 days of pregnancy and is commonly called the 20-week scan. It is also sometimes referred to as the mid-pregnancy scan. The scan looks for 11 different conditions in your baby and cannot find everything that might be wrong. 2. About these conditions The 20 week scan is an ultrasound scan that is routinely offered to pregnant women in England, Wales and Scotland. 17/12/2020 17:13. She said, 'It can also be a marker for She said she'd get the consultant to have a chat with us and refer us then to a more detailed scan at another fetal unit. Later in 'Babies lay in funny positions, he's turned over -- he's not in a good position'. Can you tell me what you're seeing?' into another room, and the scanner that she was using was a similar level to the one that we'd had for the nuchal fold, and it was, you know, extremely high-tech. Does it mean that the baby can't eat, has got no digestive system? But this little guy simply does not have a chance and we had to make the devastating choice to terminate the pregnancy to spare him any suffering. And then she finished and she turned the screen - we couldn't see the screen, so it was again the same, that she was looking at the screen and I was sitting sort of with my head behind the screen. No matter what the Lord knows and this baby is a blessing no matter what! Does great at school, awesome with other kids. It was a hard season but I cannot imagine her not being here. And how far had they talked to you during that first scan? The being caught completely off guard part was terrible for us! It was a problem. The natural thing is for the professionals to talk to each other, rather than to you, isn't it? Im so sorry to hear what you both are going through. You know, maybe that was me sort of reading between the lines, but I felt no pressure from them to To comment on this thread you need to create a Mumsnet account. And I felt that all the rolling around and being tilted back and everything like that was due to the, her trying to doubly make sure that yes, she was 100 per cent - and she was taking a lot of pictures. Describe the relationship between potential difference and electrical potential energy. They will be able to offer support and advice. But that provides me little comfort right now. The best indicator of prognosis for CDH is based on their initial blood gas (in simple terms, a blood test that shows how well someone is able to exchange oxygen and carbon dioxide) at birth. Web99% of the time, the term pain in the ass is a metaphor for a mild inconvenience. Many do well but I do recognize that a genetic disorder can definitely complicate the picture. So I'm very much conscious of lying down, and you're at a disadvantage because you're lying down anyway, and sort of 'What, what, what? Seek professional help if you feel like youre struggling to cope. Spina Bifida is a snowflake disease and affects everyone differentlyon one hand, I cant bear the thought of bringing a child into this world whos going to need countless surgeries and hospitalizations and may never walk. She felt the bad news was then communicated to her honestly and sensitively, and was based They can offer you support and advice, and help you to understand what the scan results. Sometimes technology can just scare the crap out of us. what they're seeing, they want to bounce ideas off each other and, you know, 'Is this right, is this what we think it is?' I mean, like with the dilatation of the kidney, it was explained to us, because it looked at the time on the scan that we were going to be having another little boy, which is how it turned out, she said, 'It's quite a common thing with little boys at this stage of scan for them to have slightly dilated kidneys if they've got a constriction in the urethra'. Parents who later decide to end the pregnancy have few mementoes of their baby, and several would have valued a scan photograph to keep, but this may not be offered and in their shock parents may not think to ask or may feel too embarrassed. I'm a constant feedback person. Unfortunately, bad news at the 20 week scan is not uncommon. It can be mild or severe, and can cause paralysis of the legs. That sounds like a really tough situation to be in. The You may be asked to drink some water before the scan so that your bladder is full. Specialists will typically do a fetal MRI and try to determine how much lung tissue is present on the affected side but still not an exact indicator. Sadly, some women will get bad news at their 20 weeks scan, such as pp's friend, some won't but will get complications quite late into their pregnancies. Sonographers undoubtedly face a difficult dilemma, given different people's preferences and needs for information. Its also known as the anomaly scan because it checks for any physical abnormalities in your baby. If you do, in fact, receive news that your growing baby has some abnormalities, the first thing you need to do is take a deep breath. But this week is so much worse. We are so torn on what to do and it's the worst situation to be in. I mean, like with the dilatation of the kidney, it was explained to us, because it looked at the time on the scan that we were going to be having another little boy, which is how it turned out, she said, 'It's quite a common thing with little boys at this stage of scan for them to have slightly dilated kidneys if they've got a constriction in the urethra'. At this time we just, it hit us then, 'Oh no, this is what my husband's stepbrother, you know, stepbrother my early pregnancy scans. Like theyre pretty sure its not part of a bigger genetic problem? I am just clinging onto some positive things that my doctor tells me. Two or more variables considered to be related, in a statistical context, if their values change so that as Cellular respiration is a process that all living things use to convert glucose into energy. We had a choroid plexus cyst and echogenic bowel. 2005-2023Everyday Health, Inc., a Ziff Davis company. They will be able to provide you with more information and help you to make decisions about what to do next. problems became apparent, both sides of it were explained to us, you know. thank you I have been crying non-stop since I heard the news. Instantly, you know, obviously, mother's instinct is to burst into tears and assume the worst, and my husband was trying to be quite supportive and say, you know, 'Everything's going to be fine, the baby's going to be fine. Its a detailed ultrasound scan and its offered to all women between 18 and 21 weeks of pregnancy. Measure your babys size and estimate their due date Im so sorry you got bad news and are trying to cope with this. . They found a couple of other things going on, a right pelvic kidney, and asymmetric ventricles for a total of 4 anomalies they were able to identify in utero. She was therefore not anxious initially. didn't think that at all. I will be thinking of you a lot and Id love to stay in touch after you give birth! Its good to hear and I appreciate you sharing. Shes ours. Studies have shown that ultrasound is not dangerous to you or the fetus. I didn't see my actual doctor but the doctor who reviewed my results wants me to do a second scan in 8 weeks. This was definitely not the news we were hoping to hear yesterday. The chances are that everything will be just fine. thank you for that perspective. Second, you should reach out to friends and family for support. But on the whole I feel very lucky. Some of the babies Ive taken care of with presumed very minimal lung tissue have done really well and vice versa. According to the NHS, around 1 in every 20 babies has a major health problem at the 20-week scan. The week that followed was an agonising wait. good'. Oh well, there's probably nothing to worry about. And I don't know, sometimes just the tone of somebody's voice, if they could be a bit more friendly before they switch off to do their job it would be better I think. If you live in a state with a large childrens hospital that manage babies with CDH I would definitely recommend meeting with their maternal fetal medicine specialists. It was like a sort of a red room. Baby does have a genetic variant on one of the genes that causes Kabuki, inherited from my husband but since my husband is fine, they think it should be okay. Unfortunately, there is no easy answer. I do not mean to discourage you with telling you this but also ive seen a lot of secsess storys as well. Most people said they would prefer to be kept informed during You know, we normally get sort of like, I don't know, three or four photos, one for us and one for my parents who live quite a way away, one for [husband's] parents - and I really wanted the photos, but I was just too embarrassed to ask for them. She said 'His brain's not formed properly, and his heart's not formed properly, and he's got no stomach and no kidneys and no bladder, and he's small for his age, and he doesn't have this part of his arm and his hands are malformed and he doesn't have the sort of upper part of his legs either.'. While most parents go on to have healthy babies, there is always a chance that something could be wrong. Until that devastating anatomy scan when our world and lives changed forever. I dont think there is necessarily the perfect answer and everyones situation is different. the second trimester at around 18-20 weeks. And my husband was crying, and we just didn't know, we didn't know what was going on. Many had not fully realised what the scan was for and were not expecting to hear this news. My 20 week scan is exactly a week after yours blueberry and I'm starting to have the nerves kick in! It's perfectly normal to worry.the way I see it, we can't physically look at our little ones every day so it feels like we're kept completely in the dark between scans. . We have an all-day appointment with them on Thursday where they'll perform their own ultrasound and fetal echocardiogram and then we have several consults in the afternoon with various teams. If you have a He also has a Single Umbilical Artery, SUA, leading the doctors to believe there could be something else more systemic causing these defects, like a chromosomal anomaly or genetic syndrome. These things are filled with pus, hurt like hell, and turn For the referral we pushed really hard, Kaiser thinks they are capable of handling this case and so they did not give the referral. So I was looking forward to the 20 week anatomy scan so I could see my baby and of course hear them say he's doing great in there. Low risk NIPT, no bleeding, nothing bad at all. Making things more difficult is the fact that I will be 40 in September. I will keep you posted and will update once the baby is here. But they were explained to us very well, weren't they, in sort of fairly simple terms? It is also known as the anatomy scan, fetal morphology scan, or simply the 20 week scan. But I mean, we didn't know at that point that there were any problems, so I mean we sort of said to each other, 'Well, I hope everything's okay', you know, because - and my husband just sort of went, "Oh yeah, yeah", because he's a bit, sort of - I used to be a nurse, so yeah, I There are many factors that can contribute to bad news at a 20 week scan, and it does not necessarily mean that there is something wrong with your baby. Out of every 100 women who have a 20 week scan, only about 1 or 2 will be told that there is something miscarriage. The scan takes around 30 minutes to complete and is usually done by a trained sonographer. Yeah, so they really couldn't see very much with the screening at all. He does have continence issues though. However, the 20-week scan can sometimes pick up problems. We were called in quite quickly, like laid down, gel put on, and she's scanning away, but she were quite silent throughout and not, sort of, not absent but sort of not there as well, you know. I'm so, so sorry you've gotten this news. Neurobehavioral disorders are a group of conditions associated with brain impairments, injuries, or diseases such as dementia or multiple sclerosis. come back. it's, you know, it's fine' I would have probably worried, thinking I would have a second opinion, but I think I'd have been more prepared for it then, rather than her staying silent and just sort of, you know, bringing it upon me as I come back from the toilet. So you knew at the time that you wanted one, but you just Please whitelist our site to get all the best deals and offers from our partners. The scan usually takes around 30 minutes, although it can take longer if there are problems with the pregnancy or the baby. and the kids can live a totally normal life and you would never know! I felt where I had to wait was really quite distressing. I dont have any insight on those specific abnormalities, but Im in a similar boat as you. I got bad news at the 20 week scan and it was quite serious (baby was healthy but umbilical cord wasnt so had 5% chance of surviving labour) but with very I think what was quite hard was I felt I was given a lot of information about those two conditions, on what could happen, without them definitely knowing that that was it. You and your partner will need support. Theyll contact you to let you know the results. The reality is that as painful as this is for the individual, these cases are the minority. And they didn't want to, because they weren't even sure what they were seeing, so that was quite difficult. 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